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TB Survival Prize

 

Winner TB Survival Prize 2009

Integrated Development in Focus (DIF)

GHANA

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Paul Thorn is now running a workshop for key front-line workers called "Understanding Tuberculosis". The workshops are happening only in the UK at the moment. The next workshops take place in Brighton on the 9th and 11th November. For more details, or to book a place on a workshop email info@understandingtb.org

Or visit the website:

www.understandingtb.org

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In 1955 when Chuck Felton was 17 years old he contracted tuberculosis. He spent 16 months in Cresson TB Sanatorium. You might be asking yourself, "What is a TB Sanatorium"? They were all closed by the mid-60s. Chuck, now retired and living in Lakehills, TX, has documented his time at the facility with some wonderful photographs and narative. A little piece of TB history.

Click here to go to website

 

Do you have a question about TB? There is no need to be alone!

Click here to email The Tuberculosis Survival Project

On this website you will find a variety of information. From free booklets about TB/MDR-TB that you can download as a PDF from our Book Shop to personal stories written by people that have experienced TB/MDR-TB first-hand.

Chuck FeltonThis month there are two new features amongst other things. One by Chuck Felton (pictured right), who 55 years ago at the age of 17 spent time at Cresson TB Sanatorium in the US. The inspiring thing about Chuck is that he is now retired and living in Texas. A reminder that there is life after TB when treatment regimens are adhered to (and of course access to treatment - some people don't even have this). He has also created a website of his time at the sanatorium with some great photos.

Ben OcayaThe other feature is by Benjamin Ocaya (pictured left) on his forthcoming film "Silent Killer" about his and other's experience of having MDR-TB. Both Chuck's and Benjamin's stories are inspirational.

It is great to see that it is actually possible to do something creative with the whole nasty TB experience. It is this creative approach that we need to tackle the growing TB and drug-resistance problem. It is partly because we have failed to change as the disease changed. TB never went away as so many doctors in the developed countries thought only a few years ago. We have to up our game and people who have had/have TB or MDR-TB have an important role to play however recent or long ago that was. We need to find new ways of tackling what is far from being historical, and indeed a very modern problem.

As always your personal comments, suggestions and stories are welcome for the website.

 

CAMPAIGNS
Check out TB Alert's new TB awareness campaign and website www.thetruthabouttb.org

What is the Tuberculosis Survival Project?

The Tuberculosis Survival Project (TBSP) was launched World TB Day 2006. The
project started out with several aims;

1) to raise awareness and provide information about Tuberculosis (TB) and
Multidrug-resistant tuberculosis (MDR-TB).

2) to offer a peer support service to those on the TB treatment journey.

3) to provide a facility whereby people can leave their own and read about
each other's experience of having the disease.

4) to provide country specific information so people can learn about what is
going on in their region in regards to the disease.

In Autumn 2007 the aims were expanded to also include;

5) to develop and publish relevant self-help and informative publications
that are 'really useful' to people with TB/MDR-TB.

If you haven't visited this website before, we encourage you to share your
comments and feedback about the usefulness of the website, any country
specific information that could be useful to others, and also invite you to
share your own personal experience of the illness if you are or have been a
patient.

email the editor

 



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The Tuberculosis Survival Project is an initiative by the Advocacy Partnership, Registered Charity No. 1123877
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